CFS and Migraines

How was everyones Holiday weekend? Did anyone do anything special or fun? A BBQ perhaps? Whatever you did I hope you or your loved one was pain-free. On Friday night one of our longtime friends was having a going away party. It was at a restaurant which meant I probably wasn't going to be able to go. Why you ask? I can't sit for even 2 minutes before I get excruciating pain and pressure in my bladder and vulva area. So this limits me to everything basically. That's why I am either lying down in bed or on the couch. Do you have this same problem? Needless to say I was bummed that I couldn't go to dinner. Do you miss out on social events too? It's hard isn't it? You already are suffering from chronic pain and other problems we shouldn't have to deal with this too! I get so angry sometimes because I am so limitled from this disease. To tell the truth I get angry at myself because if I didn't have IC these things wouldn't happen, but my husband is always right there to tell me that I don't have control over IC and I didn't do this to myself! So if you ever feel the same way sometimes remember that. Even if you can't go out and be social are your friends and family still close with you? I feel like this disease is very lonely! You know that's why they call it the invisible disease. They compare what we are going through to cancer but because our hair isn't falling out, people have heard and understood cancer vs IC, etc they are less likely to be there for us.

Even if I didn't get the horrible pain with sitting I wouldn't have felt good enough to go to the dinner on Friday. This weekend I have a huge increase in my CFS or Chronic Fatigue Syndrome symptoms. For so many years I had no idea I had CFS or that it goes hand-in-hand with IC. I would complain all the time that my muscles hurt so bad like I'd been run over by a truck you know the way you feel when you have the flu? I thought I was crazy because I literally felt like this all the time even when I appeared fine and healthy. This is one of the key symptoms of CFS. Lately I'm always taking a flashlight and checking my throat in the mirror. My throat doesn't look red and I shouldn't be sick anymore because I had my tonsils taken out 2 years ago. Guess what? Having a sore throat is another key symptom of CFS. Of course the main symptom the one it gets it's name from is fatigue. The other key symptoms are difficulties with memory or concentration, problems with sleep, joint pain without redness or swelling, headaches, and tender lymph nodes. If you have a couple of these symptoms or more and haven't been diagnosed with CFS it might be a good idea to talk to your doctor about it the next time you see he/she.

Along with the increased pain in my muscles all over my body this weekend last night I got a severe migraine. I almost threw up on multiple occasions either from sound or light. We turned every light off and of course at the onset of the headache I took my migraine medication and eventually took a couple hour nap. When I woke up the migraine was still present. It wasn't as strong but I was still affected by it. I had to wear my sunglasses at night in the house and ask my husband to talk very quietly. Today I still have a very bad headache and the light and sound are still affecting me. I also feel a little nauseated. If you didn't know migraines are also caused by our IC. I hope that none of you have to suffer from these but if you do I'm sorry.

I wish everyone a good week and again let's hope for that IC cure! And I want to hear from you about all my questions above! <3